TY  - JOUR
T1  - Germany’s Population-Level Cancer Registry for Clinical Data
A1  - M. Petrovic
A1  - S. Jovanovic
A1  - A. Milosevic
JF  - Asian Journal of Current Research in Clinical Cancer
JO  - Asian J Curr Res Clin Cancer
SN  - 3062-4444
Y1  - 2021
VL  - 1
IS  - 1
DO  - 10.51847/kl5vIhWrpD
SP  - 60
EP  - 70
N2  - In 2013, a federal mandate required all German states to collect additional clinical information within population-based cancer registries to actively monitor and enhance cancer care quality, improve transparency, and support health research. A decade later, we present the current state of this expanded cancer registration, including recent statistics on cancer in Germany. Cancer reporting is compulsory for physicians, with each case typically generating 5–10 reports from various healthcare providers. A standardized national dataset of approximately 130 items is utilized, and reports are generally submitted electronically. We analyzed the latest available registry data up to cases diagnosed in 2019. Incidence rates and 5-year relative survival (5YRS) for common cancers were calculated. Clinical outcomes and guideline-based quality indicator (QI) benchmarking were provided by the Cancer Registry Schleswig-Holstein (CR SH). All state cancer registries fulfilled most national eligibility requirements. In 2019, around 505,000 cancer cases were documented, with breast, prostate, colorectal, and lung cancers being the most frequent. Age-standardized incidence showed a slight decline over the past decade, and geographic variations within Germany were observed. The overall 5YRS was 67% for women and 63% for men. Therapy data for rectal cancer from 2019–2021 in CR SH illustrate that 69% of patients underwent surgery—mostly curative (84%) with tumor-free resection (91%). Radiotherapy was administered to 33% and chemotherapy to 40% of patients. Three selected QIs revealed differences across healthcare providers. The establishment of population-based clinical cancer registration in Germany can be regarded as successful. Detailed documentation of diagnosis, treatment, and disease progression, along with the use of registry data for quality assurance, benchmarking, and feedback, has been effectively implemented.
UR  - https://galaxypub.co/article/germanys-population-level-cancer-registry-for-clinical-data-hzls8ip9iqmzap0
ER  -